Stabbing neck pains after RAI - Thyroid cancer - Inspire She stated that they would not give me a definite Clean till I am 1 year out of radiation treatment. My Experience with thyroid cancer - so far: Papillary and follicular thyroid cancer (differentiated), Multiple endocrine neoplasia type 2 (MEN2), Mental challenges of living with thyroid cancer, ThyCa fundraising and thyroid cancer research grants. The first time I had RAI I had absolutely no symptoms. Now, I know the surgeon has rethought his position and is now recommending going hypo with T3 as an intermediate therapy. The quiet house has really helped me get better quickly. You may need a thyroidectomy if you have thyroid cancer or a growth on your . While I was taking 150 mcg/day, I was feeling quite good but she said my tsh didn't need to be repressed that much, that I was borderline hyperthyroid, and cut me back to 125, and then 115 (at which point I felt rather garbagey, started struggling with depression, muscle pain and some fatigue). Increase in pain at the incision that is not relieved by pain medication. He also said he would slowly decrease our visits since I am not having the depression issues and I am in a stable mental condition. Second time with the larger dose was a little worse, but nothing terrible. She was confident that these findings appeared after her thyroid surgery. 5) Biopsy report came back showing 2cm+ Papillary - w/ follicular variant, and Lymphocascular invasion, but completely contained in Thyroid. The moment was really intense, as I didn't have a clue what to expect over the next several hours. Wednesday and Thursday I continued to improve. I did not want to be anywhere around my kids or clients. I also feel much more anxious and depressed. So, I might be called to come in early. However, there was no significant difference between the groups with regard to the scores at the 1-month evaluation (p > .05). The effects of cervical kinesiotaping on neck pain, range of motion, and disability in patients following thyroidectomy: a randomized, double-blind, sham-controlled clinical trial. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. This was another full day at Madigan because it takes 4+ hours just to get through the line and get through the Pre Admission unit. 2010 Oct;(194):1-764. This is normal. One local and one about 50 miles away at a major teaching hospital. 2 weeks ago I was sent to yet another doctor, an endocronologist. The surgery went well but do to low calcium and magnesium levels (parathyroid(s) where not fully functioning) I was kept in the hospital for 2 days to ensure my parathyroids were maintaining proper levels. Difficulty swallowing. Also, at home, you have to empty and measure the JP drains yourself, and when I had them in my abdomen that as difficult. Its been almost three months since the surgery, I have no problem in swallowing anymore and my voice is better but not the same. Tightness, fullness, painful neck post Thyroidectomy Anyway, I was in a pretty good mood and was really pleased with how I generally felt and was ecstatic the surgery was over. 2010. I was immediately put on levothyroxin and sent home. The .gov means its official. I am 27 years old and was diagnosed with papillary thyroid carcinoma in December last year. At 21yo, fairly advanced cancer (luckily only papillary w/ follicular variant) was about the last thing I was expecting, so that was definitely a fun little discovery. Then a bunch of insurance crap happened (my entire surgery may not be covered because the ENT was not on my list of docs I could see - this is bs but a completely different story) and I had to start driving an hour away to see an endocrinologist. Sent us home & said if it happens again that we need to see the ent in cleveland. Post Operative Expectations | American Thyroid Association How to Take Care of an Incision After Thyroid Surgery The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. I apologize in advance for the extreme detail in this that may bore some of you, but since I had no idea what I was facing, different people's detailed accounts really helped me prepare for minor things I may not have thought of. I used regular tylenol only immediately following surgery and upon returning home. Post Operative Instruction | Thyroid Surgery Melbourne, VIC Learned its horizontal vertigo or thats what Co. (my torturerphysical theraphist) said. Federal government websites often end in .gov or .mil. Know that this cancer is treatable and you will be ok but do not belittle your diagnosis - it sucks- don't neglect your fears they will eat you up. Can it spread fast?) Abstract Introduction: Thyroid surgery is a popular and effective treatment for many thyroid diseases, including thyroid cancer. After a thyroid lobectomy, you'll need to have your thyroid hormone levels checked and will be prescribed a thyroid hormone replacement, if needed. i am at my wit's end with all of this pain after my thyroidectomy last For those that are getting ready to have this surgery I would never say "don't be scared," I would just say let the fear come like you are going skydiving and know that it will be over soon and things will start getting much better. Would really love some advice on how to proceed about improving my breathing. It was pretty awful. I was also very coherent and cognitively feeling much better. Swallowing discomfort. Also on the 4th I have a physical therapy appointment with one of the technicians and he did another wonderfully painfully session but the next 2 days there was basically no knee pain. 2019 Aug 8;49(4):1185-1191. doi: 10.3906/sag-1812-55. The scar is 5cm long and as of now looks good. She felt my neck and again felt nothing and sent me on my way. Dr H. thinks everything is looking good and she retires on the 19th of Aug. September 17th took S. to Madigan for her weight loss surgery; J. came with me to help me through the waiting. Thyroid Surgery Scars: Everything You Need To Know NSAIDs and duloxetine was not effective for these symptoms. I'm considered low risk for recurrence. So, here is a more detailed experience of what just the thyroidectomy was like. Questions: call the office on (03) 9347-8786. My throat feels full and I still feel "gaggy" from time to time. RAI was determined to be unnecessary, though I see my oncologist every 3 months (had one scare where some of my lymph nodes blew up necessitating a CAT scan last year), my endocrinologist every 6 months, and have my neck ultrasounded every 6 months. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. My voice was also severely affected but it got better with exercising. Chyle leak is a rare complication of thyroid surgery. The initial screening showed no cancer on that side once removed. Stretching exercises to reduce symptoms of postoperative neck - PubMed Ultrasound revealed another Lymphnode near Thryoid bed that is 1.5cm (Where did that come from, could it be enlarged due to surgery? Although there are a limited number of studies showing effects of neck stretching exercises following a thyroidectomy in reducing neck discomfort symptoms, no study has specifically dealt with and examined the effect of neck stretching exercises on neck pain and disability. Soon after the diagnosis, I underwent total thyroidectomy with right lateral compartment and central compartment dissection on December 28, 2020. After about a week or so, the pain was intermittent. 9 Mar 2011 1 year from having thyroid removed The surgical pathology reported a 5 cm papillary thyroid cancer in the left lobe of the thyroid with lymphovascular invasion, microscopic positive surgical margins, with five of 59 positive lymph nodes (two left level IIA nodes, one Delphian node and two level VI nodes). Suffice to say, I was a total and complete mess. Pain medication doesn't agree with him. I'm normally an extremely social individual that loves living life to the fullest and experiencing the best that it has to offer. mcg of synthyroid. I woke up and ate some more pretty soft food (didn't want to push it) and stayed up until about 10pm. They say it looks bigger than it is because its inflamed from surgery and RAI it is 2x1x1 CM in both beds, cancer was only on right. The question is has anyone had these symptoms: burning pain, dizzy, swelling post op 3 weeks ? My dr was booked until late February and I was freaking out so I went to the ER. Neck /throat tightness and pressure Total Thyroidectomy 16 . Kappeler mentioned Horners syndrome as a complication of thyroid surgery in 1865, and Kaelin reported a case of the syndrome following thyroidectomy in 1915. I am currently taking 275! A postoperative neck ultrasound conducted in the clinic did not show any suspicious nodes, masses, hematoma or collection that could potentially compress the sympathetic trunk. When I told my endo 3 weeks ago that I feel cruddy, I had a blood panel done and everything is in the normal range. However, expecting something and being prepared for it are not the same thing. Some may be from my Saliva glands, but THyroid bed feels sore for sure. Have a wonderful holiday season and thank you again so much to this board for existing. I did. TeamInspire Would you like email updates of new search results? It has been beyond informative and makes a huge difference knowing there are people out there that understand. Please help me understand! This is normal and will gradually get better as the wound heals. I went to both appointments with a list of written questions. Yeah! She also gave me hints to help minimize the surgical scar. As days pass, I feel that this might not be a good decision. I had to drive to Denver three days in a row. 2012 w/ different Endocrinologist, found 6 very large lymph nodes in neck. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. Twenty-eight patients who had undergone thyroidectomy and 28 healthy . As a complete aside, that bair paws gown they'd put me under was starting to heat up like turkey in a browning bag. It is important for endocrinologists and thyroid surgeons to be aware of this uncommon complication to reduce the risk for this facial disfigurement during surgery. Cleanse the incision area the day after surgery. I was told to get naked and to put on a gown called a bair paws gown. Clipboard, Search History, and several other advanced features are temporarily unavailable. Thyroid Surgery Recovery, Side Effects, and Complications - Verywell Health On the 6th I had my hearing test from my 2nd ear surgery, it came back that my left ear is defiantly almost perfectly recovered (to what bone conduction reads) and said I will not have to worry about hearing aids for a few years at least. The visit included an ultra sound and 6 needles biopsy of the mass. Any suggestions will be greatly appreciated. Mostly because this disease caused a huge disruption in my life. and 6mm papillary carcinoma w/ adjacent 2-3mm papillary carcinoma another section 6mm papillary carcinoma and right parathyroid lymph node with thyroid carcinoma 8mm. I felt bad the first two days but that was it. Your neck is likely to be swollen and may feel hard and numb right after the surgery. They said let the steri-strip fall off on its own and it fell off today. disability; neck pain; neck stretching exercises; thyroidectomy. I was downing water like crazy as well, which helped but also was a double edged sword of making me need to use the restroom quite frequently, which was a chore with all the monitor wires attached. Cheers. I received a lot of encouraging feedback from many people on this site and would like to thank them all again. But, pre-op doesn't have those units because most people are only in pre-op for a short time. Epub 2022 May 30. I've read posts on this board from people who say they've met with doctors who were evasive about answering certain questions. I was also informed when they removed my thyroid there was a parathyroid gland in each of the thyroid sections removed (so I have 2 of 4 parathyroid glands removed as well) this is probably why I had minor problems with calcium and magnesium levels. Another good point I did not have any hiccups from this surgery. We got to know each other, and exchanged some friendly banter on a variety of topics including football and hockey. For me, this was the only appointment at which anyone even discussed paying up front for services. So the procedure was to do partial thyroidectomy, and biopsy during surgery, then removed rest if cancerous. Tuesday morning I saw my surgeon who removed a huge bandage from my neck. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. So, seriously, take the stool softener. The only good thing is that they have taken me off the Low Iodine Diet and are starting to give my Synthroid. 5) Does the TSH suppression level really effect the possibility of spread? Surgery took 6.5 hours and everything went well. I was told that I couldn't do radioactive iodine (rai) for six months due to my ct scan (cat scans use iodine for imaging and RAI would not be as effective). Soooo I got in to see a new guy in my Drs practice and he referred me to an ENT the next week. 2022 Sep;46(9):2212-2222. doi: 10.1007/s00268-022-06610-0. Thyroid function labs were all within normal range. Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist. Because I had such an intense spread, my surgical experience was a bit different than others. Some of it still doesn't make sense to me (in that the sequence of logic fails me), but then again I was on strong pain killers for part of the time and I didn't go to medical school. Ask for the brand name thyroid drug. Increased swelling, redness, or drainage from the incision. But, I wasn't really all that coherent, so I asked if I could have some water (remember, nothing to eat or drink from midnight the night before so, I'm getting on 23 hours without food or drink) CRUSHED GLASS IN ACID MIXED WITH GRAVEL couldn't have felt that horrible. So, I was really getting insistent that he go home. Removing lymph nodes in the neck (lymph node dissection). I am still thinking the level of Synthroid is low for me but according to Dr Ch. I went to bed and slept until 445 am when I took some Tylenol and went back to sleep until 730am. Also, for me that was nice because they normally come out on day 2 to 4 after surgery and that would have meant another 100 mile round trip to get the JP drain removed. I am in the normal range and will worry about that in December time frame. However, since my surgery, I've been hit with insomnia. She was right, the yogurt was a snap to get down while the apple juice was really painful. Jon. I put them on the table so the doctor could see them and very soon after saying hello, I said, these are my questions. I did not receive a call, so, I showed up at the appointed time and was taken back to pre-op at almost exactly 2pm. Stretching exercises vs manual therapy in treatment of chronic neck pain: a randomized, controlled cross-over trial. During RAI (I had some lympnodes 1 or 2 not 100% sure) take up Iodine, plus had some small growth in thyroid bed which may be non cancerous. If I hadn't known about 7 other women who had all gone through total thyroidectomies and RAI with absolutely no lingering symptoms, I would have been freaking out prior to my surgery. Don't stay in a hotel if you can avoid it after RAI (it really is dangerous to others) and if you do, don't post it anywhere or you will be crucified (however if you search, there are really good posts about how to do it as safely as possible). I had many thyroid nodules but the largest,cancerous one was 3.8 cm. Thorsen RT, Dssing H, Bonnema SJ, Brix TH, Godballe C, Sorensen JR. World J Surg. On April 20th I was informed that the results from Armed Forces institute of Pathology Washington DC and the summary was that the large mass of follicular cells was also cancer. Through the Fall I kept feeling the pain in my neck and again spoke to my primary care doc. Parathyroidectomy - Mayo Clinic And mostly, please, pass it forward after you have your surgery. You can relieve the discomfort using non-steroidal pain medication like ibuprofen. It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. Now that I have my Vestibular training times setup I hopefully will be able to schedule Physical therapy for my knees without conflicts. Post thyroidectomy neck pain after endoscopic thyroidectomy. PMC They said the scar from my thyroid surgery is mostly healed and looking good and that we can start planning the 2nd ear surgery. At about 6:45pm the anesthesiologist came in, asked a few questions and said he was hoping for my surgery to start at around 7pm. A complete neurologic examination confirmed otherwise normal cranial nerves. This is the post I put online two days after surgery https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/home-from-tt/ The participants were randomly assigned either to the stretching exercise group (n = 40) or to the control group (n = 40). Patients who undergo thyroid surgery frequently suffer from unpleasant symptoms such as a stretching, choking, or pressing feeling or discomfort in the neck for a long time.