Nothing to Be Scared About 2001. 10. In what ways, if any, did Gey personally profit from the development of HeLa? As a patient of MyMichigan Health, you have the right to obtain your medical 8. She was institutionalized due to epilepsy and died at age fifteen. For terms and use, please refer to our Terms and Conditions Henrietta went to her house after radiation treatments at Johns Hopkins.Reverend James PullumDeborahs second ex-husband, a former steel-mill worker who became a preacherSadie SturdivantMargarets sister, Henriettas cousin and confidante, she supported Henrietta during her illness. What types of experiments have been done, and how did researchers find test subjects? Compare the differences between irresponsible and responsible reporting on HeLa and the Lacks family. He handed Deborah a vial of HeLa cells, which Deborah kissed. Members will be prompted to log in or create an account to redeem their group membership. How did TeLinde, Gey, and others at Johns Hopkins respond to Bergs request? You can opt-out of the sale or sharing of personal information anytime. SCIENCE 1. According to Ethels cousins, why did she dislike Henrietta? 9. 2. Henrietta was diagnosed with cervical cancer shortly after his birth. How did her reaction evolve after she had a chance to dwell on the picture and process the disturbing information that she had been given? She had a Deborah explained that Elsie had frequent seizures, but she thought some of Elsies problems may have stemmed from deafness. Elsie Lacks (born Lucille Elsie Pleasant) Henriettas second born and eldest daughter. While scientists were working with Henriettas cells, they found out that they were immortal. Skloot tells her that the blood McKusick took from her family wasn't for a cancer test. Using the book as a guide, describe the process of scientific inquiry. Lengauer hands Deborah a vial of her mother's cells, and Deborah warms it in her hands, saying her mother is probably cold. Wed love to have you back! Why did scientists want to fuse human and animal cells? Explain how the development of the Pap smear improved the survival rate of women diagnosed with cervical cancer. 6. A few months after, Rebecca attends the baptism of Sonny's granddaughter LaBrea. Albert Lacks Henriettas white great-grandfather. Pattillo described how Elsie was frequently used for medical experiments without informed consent or proper consideration for her well-being, similar to what happened with her mother Henrietta's cells. The next day, Deborah's hives have improved slightly but she decides to visit a doctor anyway. Analyze the authors purpose in providing an explanation, describing a procedure, or discussing an experiment in a text, identifying important issues that remain unresolved. She was a trained surgical nurse. Emanuel Mandel director of medicine at the Jewish Chronic Disease Hospital (JCDH) who partnered with Southam in unethical experiments. 11. 8. You may cancel your subscription on your Subscription and Billing page or contact Customer Support at [email protected]. Explain the meaning of the idiomatic expression to drop a bomb. 2. 9. One of the important issues raised by Skloots book is the ethics of journalism. 6. In the Afterword, Skloot summarizes the main issues and legislation surrounding the collection and use of human tissue samples. Slavin founded Essential Biologicals, a company that sold his cells, and later cells from other people so individuals could profit form their own biological materials. Discuss the methods by which a nonfiction writer is able to recreate dialogue and recount descriptions of historical events and locations. Moore appeals the decision.1985 Portions of Henriettas medical records are published without her familys knowledge or consent.1988 The California Court of Appeals rules in John Moores favor, saying that patients must have the power to control what becomes of their own tissues. 3. The side-effects of pneumoencephalography were many, including seizures, nausea, headaches, and permanent brain damage. What did she promise to do for the Lacks family if and when the book was published? Why did Deborah decide to go see her mothers cells? Despite Deborahs clear shock, she insisted she still wanted Use specific facts about Henrietta, Gey, and/or medical practice in the 1950s to support your opinion. They wander around the building looking for the medical records office, before Deborah finally takes matters into her own hands and starts yelling to get someone's attention. The meeting ended with Lengauer giving both Lackses his phone number and telling them to call him with any other questions about cells. What specific request did Gey make prior to going into surgery? What are the connotations of the term home-house? By clicking Sign Up, I acknowledge that I have read and agree to Penguin Random House's Privacy Policy and Terms of Use and understand that Penguin Random House collects certain categories of personal information for the purposes listed in that policy, discloses, sells, or shares certain personal information and retains personal information in accordance with the policy. Save over 50% with a SparkNotes PLUS Annual Plan! The suit claims that the practice of gene patenting violates patent law and has inhibited scientific research. (including. 3. Create a time line that begins with the removal of Henriettas tissue sample and traces the scientific and medical breakthroughs that have been made possible as a result of HeLa cells. She is not always an easy person to be friends with - she is paranoid and somewhat impulsive, even once becoming physically violent with Rebecca. Rina reads around 100 books every year, with a fairly even split between fiction and non-fiction. Do you agree or disagree with their reasoning? Explain the theories that Henriettas family have about why her cells are so powerful. What did Mary, Geys assistant, realize when she saw Henriettas painted toenails? Chapter Twenty-Three: Its Alive 1. 4. Guided Reading and Discussion Questions are provided for each chapter. 13. 5. According to State Attorney General Louis Lefkowitz, what do people have an inalienable right to? Chapter Seventeen: Illegal, Immoral, and Deplorable 1. Rebecca finds one record from shortly before Henrietta gave birth to Deborah; the doctor says her cervix looked healthy then. 4. Explain how Henriettas real name became public knowledge. What did Howard Jones realize when he reviewed Henriettas medical records? The soul cleansing in Chapter 35 and Gary's description of the meaning of Henrietta's contribution in Chapter 36 show that their religious faith and their understanding of science is interconnected. From a scientific perspective, it seems peculiar to think of the cells as human, since they cannot see or think or feel. Locations. Henrietta went to her house after radiationtreatments at Johns Hopkins.Reverend James PullumDeborahs second ex-husband, a former steel-mill worker who became a preacherSadie Sturdivant Margarets sister, Henriettas cousin and confidante. She and Henrietta sometimes sneaked out to go dancing. Chapter 38. It is given the name HeLa after the first two initials of Henriettas first and last names.1951 Henrietta Lacks dies of an unusually aggressive strain of cervical cancer.1952 HeLa cells become the first living cells shipped via postal mail.1952 The Tuskegee Institute opens the first HeLa factory, supplying cells to laboratories and researchers and operating as a nonprofit. Sir Lord Keenan Kester Cofield attempted to sue Johns Hopkins and the Lacks family. Gey chose to give away samples of HeLa to his colleagues almost immediately. 9. Zakariyya is quiet for much of the visit, but he thanks Lengauer and Rebecca before he leaves. 5. She's not too concerned about the money. Even without having been raised by Henrietta, Deborah is clearly her mothers daughter, and carrying one her legacy. Chapter Eighteen: Strangest Hybrid 1. He became known as a vigilante. WebThe records MDHHS maintains are limited to services provided by MDHHS programs. TCU Library's core values and strategies. Lengauer then showed Deborah and Zakariyya how to look at the cells under a microscope. Dont have an account? What do these interactions reveal about their attitudes toward religious faith? As children, they worked the tobacco fields together.Crazy Joe GrinnanHenriettas cousin who competed unsuccessfully with Day for her affectionDavon MeadeDeborahs grandson who often lived with and took care of herEthelGalens wife, an abusive caregiver to Henriettas three youngest childrenFred GarretHenriettas cousin who convinced Day and Henrietta to move to Turner StationGalenHenriettas cousin. How does Deborah respond after Garys prayer? 2. 10. How does Deborah demonstrate that she is in control when her right to view Elsies records is questioned? Explain what an immortal cell line is. Walter Nelson-Rees the geneticist who tracked and published the names of the cell lines contaminated with HeLa without first warning the researchers he exposed. Slavin founded Essential Biologicals, a company that sold his cells, and later cells from other people so individuals could profit from their own biological materials.Timeline1889 Johns Hopkins Hospital is founded.1912 Alexis Carrel claims to have successfully grown immortal chicken-heart cells.1920 Henrietta Lacks is born in Roanoke, Virginia.1947 The Nuremberg Code, a set of ethical standards for human experimentation, is produced as the result of a trial against several Nazi doctors who conducted experiments on prisoners during WWII.1951 George Gey successfully cultures the first immortal human cell line using cells from Henriettas cervix. 9. Your group members can use the joining link below to redeem their group membership. How soon after Henriettas death did the media attempt to write about her? Why did Henriettas doctors need to ask for her familys permission to remove tissue samples after her death? Additionally, given the medical miracles accomplished with Henrietta's cells, Gary believes that Henrietta was an angel or spiritual being sent by God. 2. She organized an effort tobuild a Henrietta Lacks museum.John Moore cancer patient who unsuccessfully sued his doctor and the regents of the University of Californiaover the use of his cells to create the Mo cell lineThe Immortal Life of Henrietta LacksRebecca SklootA Broadway Paperback ISBN 978-1-4000-5218-9 RebeccaSkloot.com HenriettaLacksFoundation.orgA Readers GuideMichael Gold author of A Conspiracy of Cells. How have groups of people such as African Americans, women, children, and most recently, immigrants, fought for legislation protecting their right to privacy? In Elsie's medical record is a photo of her looking unkempt and crying, which a white woman's hand around her throat. Craft and Structure Interpret words and phrases as they are used in a text, including determining technical, connotative, and figurative meanings, and analyze how specific word choices shape meaning or tone. Her case is now considered terminal. What does Cootie think about the reason that HeLa cells were used to develop a polio vaccine? She helped raise Lawrences siblings after Henriettas death and advocated for them when she discovered they were being abused. Before her death, she received treatment in a segregated colored ward at Johns Hopkins, the only hospital in Baltimore that would treat black patients. Describe the depth of the Institutes involvement. Chapter Thirty-Eight: The Long Road to Clover 1. She points out that the HeLa cells did a lot of good for science, but she just wishes she knew more about who her mother was. How did Deborah initially react to the news about her sister? 6. Why had he saved patients medical records? The Lacks family learns for the first time that Henriettas cells have been commercialized.1984 John Moore unsuccessfully sues his doctor and the Board of Regents of the University of California for property rights over his tissues. How did Bobette find out about HeLa? Explain the connection that Sonny makes between his mothers personality and the ways he believes HeLa cells have been used. Rebecca's depiction of Deborah is nuanced and masterful. Research the laws and the ethical debate over offering payment in exchange for participation in scientific studies, or for the donation of blood, eggs, sperm, or other biological materials. 3. 6. 5. 9. Chapter Fifteen: Too Young to Remember 1. 5. What belief of Deborahs does his attitude affirm? Why do you think Pattillo agreed to help Skloot contact Henriettas family? Chapter Fourteen: Helen Lane 1. Explain how the human papillomavirus (HPV) causes cervical cancer. Why did Zakariyya decide to participate in research studies at Johns Hopkins? Deborah Lacks looking at her mother's cells for the first time, 2001, courtesy of Critics at Large http://www.criticsatlarge.ca/2012/05/in-every-person-universe-immortal-life.html, Henrietta Lacks born Loretta Pleasant in Roanoke Virginia in 1920, David Day Lacks Henriettas husband and cousin, Lawrence Lacks Henrietta and Days firstborn child. 11. 3. Her name was Henrietta Lacks, but scientists know her as HeLa. Deborah submitted a written request for a photocopy of Elsies autopsy report. Analyze the authors purpose in providing an explanation, describing a procedure, or discussing an experiment in a text, defining the question the author seeks to address. 20% What questions does Deborah have about her mother? 3. Please provide all information in your posts. He showed them the freezer where HeLa samples were kept and noted that the HeLa contamination seemed like poetic justice for sciences mistreatment of the Lacks family. Common Core Standards English Language Arts 11-12:Key Ideas and Details Cite strong and thorough textual evidence to support analysis of what the text says explicitly as well as inferences drawn from the text, including determining where the text leaves matters uncertain. Chapter Nine: Turner Station 1. Regardless of the truth of these hauntings, the stories of patient abuse and neglect, including that of Elsie Lacks, are even more horrifying to consider. 4. 2. Contact us 6. He attempts to sue Hopkins and the Lackses for refusing to allow him access to Henriettas medical records. Craft and Structure Determine the meaning of words and phrases as they are used in a text, including figurative, connotative, and technical meanings; analyze the cumulative impact of specific word choices on meaning and tone (e.g., how the language of a court opinion differs from that of a newspaper). 8. How did she react when this information was eventually shared with her? Why were the hospitals medical records from the 1950s and earlier disposed of? quarterly journal African American Review promotes a lively exchange 7. The hospital conducted pneumoencephalography on epileptic children, and Elsie likely would have been included. Instead, we must see in every person a universe with its own secrets, with its own treasures, with its own sources of anguish, and with some measure of triumph. Analyze the book in light of this quote. How do these events help explain Deborahs initial reluctance to talk with Skloot? Which of these sentences from the passage best supports the authors claim that Henriettas cells have been widely used by scientists? 11. Born on August 1, 1920 in Roanoke, Virginia, Lacks lived 31 years filled with joy, laughter, and dancing around the kitchen table with her children. Even more miraculously, there was a record for Elsie Lacks. What are the connotations of the two sets of terms? 4. Deborah shifts between joy at finding out new information about her mother and panic at each new fact. Miraculously, he had a book that contained reports from 1955. To redeem, copy and paste the code during the checkout process. How did prison change Joe? With so many aspects of The Immortal Life of Henrietta Lacks to discuss, the fate of Deborahs younger sister, Elsie, sometimes goes unmentioned. From a single, abbreviated life grew a seemingly immortal line of cells that made some of the most crucial innovations in modern science possible. Culture . Directly after rebuking Deborah for her paranoia, Rebecca begins to learn more about its origins. title Negro American Literature Forum and for the next fifteen years She lives in Chicago. He had five children by a former slave named Maria and left part of the Lacks plantation to them. Why did researchers want DNA samples from Henriettas family? among writers and scholars in the arts, humanities, and social 6. 2. WebElsie Lacks -Henrietta's second born -institutionalized for epilepsy -treated poorly in hospital -died at fifteen Loretta Pleasent Henrietta's birth name Chester Southam -Mixed saline 4. George Geyhead of tissue-culture research at Johns Hopkins. McLaren Pain Management Center. Chapter Twenty-Five: Who Told You You Could Sell My Spleen? 1. Explain your answer. The marriage was abusive and ended in divorce. Deborah explains that she's extra suspicious of outsiders because of Cofield the con artist. How was the timing of this realization ironic? There is often a tension between religious faith and science. 5. In telling Henriettas story, Skloot draws from primary sources and personal interviews to provide insightful narrative accounts of Henriettas childhood, young adulthood, diagnosis, illness, and tragic death. 2. 2. Do you agree that Henrietta should have been correctly identified in order to give her the fame she so richly deserves, or do you think her anonymity should have been protected? LitCharts Teacher Editions. Why did the Tuskegee Institute become involved in the mass production of HeLa cells? David Jr. Sonny Lacks Henrietta and Days third child, Deborah Dale Lacks Henrietta and Days fourth child. What simile does she use to describe the way a cell looks? Do you think Zakariyya should be the one to have this object? How did this abuse affect him? What do the Lackses believe Johns Hopkins did to black people? She and Henrietta sometimes sneaked out to go dancing. According to Deborah and Pullum, how is Henriettas story going to be different for Henriettas great-grandchildren and future generations? Each time they stopped, Deborah would approach strangers and, apropos of nothing, present them with the 5. Chapter Twenty-Eight: After London 1. What does the juxtaposition of these two projects reveal about race relations in the early 1950s? After her diagnosis and treatment, how did Henrietta behave? 4. 3101 Discovery Drive Did you know you can highlight text to take a note? 5. What was Henriettas final request? Compare and contrast the different attitudes the white and black Lacks family members held about race. How did Deborah discover the truth about Cofield? Why does Sadie think Henrietta hesitated before seeing a doctor? 6. During her surgery to remove the cancer, they took a sample of a tumor in her cervix to have it examined in the lab. Deborah submitted a request to have copies made of Elsie Lacks medical records, and Lurz left Skloot and Deborah with some archival documents to look through while he made the copies. A lay preacher, he performed a faith healing on Deborah. What does Skloot realize after watching the BBC documentary about HeLa? Chapter Ten: The Other Side of the Tracks 1. What does this term suggest about the values of the Lacks family? You'll also get updates on new titles we publish and the ability to save highlights and notes. 7. Lucille Elsie Lacks (1939 - 1955) was the daughter of David Lacks and Loretta Pleasant. Analyze how and why individuals, events, or ideas develop and interact over the course of a text. Describe the lawsuit that set a legal precedent for patenting biological products such as cell lines. was titled Black American Literature Forum. What were the results of his actions? As a writing assignment, have students practice writing completely factual and objective narrative descriptions of historical locations or figures based on primary source documents such as photographs, eyewitness accounts, testimonies, and public records. 4. What objective details suggest that Henrietta was in extreme pain at this point in her illness? Consider Deborahs comment on page 276: Like Im always telling my brothers, if you gonna go into history, you cant do it with a hate attitude. 3. Gladys Lacks Henriettas sister who disapproved of Henriettas marriage to Day. Here's what you'll find in our full The Immortal Life of Henrietta Lacks summary : An avid reader for as long as she can remember, Rinas love for books began with The Boxcar Children. What was Chester Southam concerned that HeLa cells might do? About The Immortal Life of Henrietta Lacks. He published details from Henriettas medical recordsand autopsy report without permission from the Lacks family.Michael Rogers Rolling Stone reporter who wrote an article about the Lacks family in 1976.He was the first journalist to contact the Lackses.Sir Lord Keenan Kester Cofieldattempted to sue Johns Hopkins and the Lacks familyTed Slavin a hemophiliac whose doctor told him his cells were valuable. What did Pullum ask Skloot to preach about at JaBreas baptism? 8. 5. 7. Who do you think makes the more persuasive argument, Van Valen or Stevenson? Chapter Thirteen: The HeLa Factory 1. 7. Elsie Lacks was the second child of Henrietta Lacks. 3. She has worked as a correspondent for NPRs Radiolab and PBSs NOVA scienceNOW, and is a contributing editor at Popular Science magazine and guest editor of The Best American Science Writing 2011. College and Career Success/Interdisciplinary. The Immortal Life of Henrietta Lacks study guide contains a biography of Rebecca Skloot, literature essays, quiz questions, major themes, characters, and a full summary and analysis. 8. What do the Tuskegee Syphilis Study and the Mississippi Appendectomies suggest about the history of African Americans and medicine? Where did Southam find test subjects for his second research study? By entering your email address you agree to receive emails from SparkNotes and verify that you are over the age of 13. What happened to the HeLa cells that Mary cultured? Why did David Lacks take Henrietta to the public wards at Johns Hopkins instead of a closer hospital? Deborah clearly wasnt handling the stress of the day well. Why did a committee of scientists form the American Type Culture Collection (ATCC)? 7. Review the notes on Henriettas medical history found on page 16. In the morning, Rebecca is exhausted and Deborah has broken out in massive hives and welts. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Elsie Lacks: Henriettas Daughter, Committed to a Hospital. 5. 27 Childrens & YA Books Written by Asian Authors, The Books Alexis Patterson Is Loving Right Now, Browse All Our Lists, Essays, and Interviews. Why did doctors stop giving Henrietta blood transfusions? When Skloot consulted Lurz about the study, he said that, given the years the study was conducted, it was likely Elsie Lacks Crownsville time included being experimented on. 11. Literacy in Science and Technical Subjects Grades 11-12 Key Ideas and Details Cite specific textual evidence to support analysis of science and technical texts, attending to important distinctions the author makes and to any gaps or inconsistencies in the account. Why do you think she responds this way? Project MUSE Gary explains that he believes Henrietta's cells are her, that God has given her immortal life as promised by Jesus in the Bible. Journals About The Immortal Life of Henrietta Lacks, The Immortal Life of Henrietta Lacks Summary, The Immortal Life of Henrietta Lacks Video, Read the Study Guide for The Immortal Life of Henrietta Lacks, Henrietta Lacks: Used as a Means to an End, The Nature of Henrietta Lacks' Immortality, Introduction to The Immortal Life of Henrietta Lacks, The Immortal Life of Henrietta Lacks Bibliography, View the lesson plan for The Immortal Life of Henrietta Lacks, View Wikipedia Entries for The Immortal Life of Henrietta Lacks. All content 2019 Texas Christian University. Based on the descriptions of Gey found on pages 3839, offer three adjectives that best describe his personality. Deborah interprets this as evidence that Rebecca is lying, and demands to know who she's working for. 5. Make a prediction based on the foreshadowing regarding Mr. Cofield. 12. About the Author REBECCA SKLOOT is an award-winning science writer whose articles have appeared in The New York Times Magazine; O, The Oprah Magazine; Discover; Prevention; Glamour; and others. Paraphrase the paragraph in Rogerss article that the Lacks family found extremely upsetting. 6. 8. What does Deborahs comment to Lurz that if you gonna go into history, you cant do it with a hate attitude tell you about the type of person she is? WebElsie was institutionalized at Crownsville Hospital in Maryland and died in 1955. three American Literary Magazine Awards for Editorial Content in the 1990s. She was institutionalized due to epilepsy and died at age 15. Deborah is prepared, however, and hands him legal documents showing her relationship to Elsie. Her family had no idea that part of her was still alive, growing vigorously in laboratoriesfirst at Johns Hopkins, and eventually all over the world. What is Skloot revealing through the juxtaposition of scenes and the division of the book into the three sections of Life, Death, and Immortality? Lurz managed to find Elsies autopsy report along with a photograph. SparkNotes PLUS What are the consequences of this perspective? 6. What did Henriettas friends and family do when they found out that she needed blood? Tap into Getty Images' global scale, data-driven insights, and network of more than 340,000 creators to create content exclusively for your brand. 3. 5. What do these similes suggest about biology? Sign up for news about books, authors, and more from Penguin Random House, Visit other sites in the Penguin Random House Network. 2. How was Joes life different from his brothers lives? Sadie Sturdivant Margarets sister, Henriettas cousin and confidante. About the Guide The Immortal Life of Henrietta Lacks contains three main narratives, each with unique applications to the disciplines of language arts, history, and science. The Journals Division publishes 85 journals in the arts and humanities, technology and medicine, higher education, history, political science, and library science. What is their position on suing over the use of HeLa? 8. Get Annual Plans at a discount when you buy 2 or more! Free trial is available to new customers only. Who was the daughter of Henrietta Lacks that died only a few years after her mother? [1] Compare and contrast the medical research likely performed on Elsie with Geys research and Southams research. 9. Analyze in detail how an authors ideas or claims are developed and refined by particular sentences, paragraphs, or larger portions of a text (e.g., a section or chapter). All Thats My Mother 2001. What physical ailments did Deborah suffer from as a result of the excitement and stress of seeing her mothers cells for the first time, and learning about Elsie? How can you tell that Elsies photograph and autopsy are deeply troubling to Deborah? 5. Chapter Nineteen: The Most Critical Time on This Earth is Now 1. She was institutionalizeddue to epilepsy and died at age fifteen.Gladys LacksHenriettas sister, who disapproved of Henriettas marriage to DayJohnny PleasantHenriettas father. 2. Renews May 8, 2023 Elsie Lacks, Henriettas youngest child, had been committed to Crownsville Hospital Center for alleged cerebral palsy, epilepsy, and a diagnosis of idiocy (273). Project MUSE is a leading provider of digital humanities and social sciences content, providing access to journal and book content from nearly 300 publishers. Give an example of propaganda that was used to fuel the publics fear and distrust of tissue culture. Deborah submitted a request to have copies made of Elsie Lacks medical records, and Lurz left Skloot and Deborah with some archival documents to look through while he made the copies. Ted Slavin a hemophiliac whose doctor told him his cells were valuable. Why did the fact that HeLa cells are malignant make them particularly useful in the study of viruses? Describe the changes that had taken place in the lives of Henriettas children by 1980. Explain why it would be easy to believe that the Marvel super villain, Hela, Goddess of Death, was based on Henrietta Lacks.